There are many reasons why children have visual impairments. Sometimes it’s genetic, or the result of an infection or injury. In many cases no specific cause can be identified.
Sometimes a simple explanation may be given, but diagnosis is often difficult, especially if the condition is rare and little understood. It’s not unusual for the diagnosis of a child’s medical condition to take months or even years. Sometimes families never get the explanation why their child has a visual impairment.
Questions to Ask from medical professionals
- What’s the eye condition called and how do you spell the name?
- What is the cause of my child’s visual impairment?
- Can anything be done to cure or improve the condition?
- Is any special treatment necessary?
- What can I do to help my child?
- Is there anything my child should not do (e.g., rub their eyes or shake their head, or take part in certain activities)?
- Is the condition likely to get worse, better or stay the same?
- What risks are there? For what should I look out?
- When should my child be examined again?
- Do you have more information on the eye condition that I could take home and read?
- Is there a website on which I can find more information?
- Where should we go for further advice and help?
- What support is available?
- Is this a family or inherited condition? If so, will we be referred to a genetic counsellor and have genetic tests?
- Resources for assistance and further reading
If you have been given a diagnosis of a particular condition affecting your child’s vision, there is ample information and videos available on the internet.
Articles and Videos about Visual Impairment
- Visual Impairment conditions
- How the eye works
- Shedding light on low vision
- Cortical Visual Impairment (CVI) is a term that describes visual impairment as a result of brain damage where the eyes can see, but the brain has a hard time making sense of what the eyes can see.
- videos about testing children’s eyes showing what to expect at an eye clinic or the ophthalmologist’s rooms.
- Your Infant’s Visual Development
- What blindness Means in the Mind of a Blind child. A child who is born blind does not know what it is like to see. Until he or she is old enough to begin to understand how other people do things, blindness seems normal. Therefore, a small child will not feel bad about blindness until someone teaches them (directly or indirectly) to feel bad about it.
- Behaviour patterns some visually impaired (VI) children display (Blindisms) which are stereotypical behaviours which diminish through enough stimulation and interesting environments.
Child feeling a tactile book wearing an eye guard to protect him from poking his eyes
On the following pages you will also find information and guidance about your own feelings, welcoming your child with a visual impairment in the family and with friends, a home program and information to guide you through helping your child to grow and develop to the best of his/her ability.
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